20 related questions found. Overall, people with MS need a balanced, low-fat and high-fiber diet. Finally, what's really helped is articles and blogs like yours where we can help each other--and our friends and loved ones--understand, connect, and feel we're not alone.
I couldnt agree more on everything you said! To me fatigue is like being encased in concrete boots and trying to walk forward is just a huge effort. See the section on eating well.
But I always feel like Im playing catch-up. MS fatigue is not like normal fatigue. Also Check: Natural Remedies For Brain Fog And Fatigue, Recommended Reading: How To Fix Mental Fatigue. Also Check: Anti Fatigue Wine Kitchen Mats. You're definitely not alone!
In some cases, it might be something simple and easy to fix, like having caffeine at bedtime. Fatigue.
Their job description requires them to care, listen, and devote themselves to caring and healing. Prioritize: Which is most important today--shopping or going to the baseball game? Best Wishes, Calie
I use the word "lassitude,"
Calie, I to have fatigue/tiredness. I live alone, dont have someone to have small talk with and relax in a social way, so its impossible to not have that down time to not relax my mind. It is effecting my work and daily life. It can be directly related to MS from brain or spinal cord lesions, or more indirectly related due to other MS symptoms such as depression and fatigue, or from wider relationship and social issues stemming from MS. I used to love going to the mall with a friend or even by myself.
Doctors may prescribe off-label medications, such as: Besides medications, doctors may prescribe other measures to manage fatigue, which include: Dont Miss: Is Fatigue A Symptom Of Depression. If you get allergy-related migraines or havent slept well, congestion can worsen an existing headache and seem to concentrate it in the sinuses.
I want to add to Calie's quicksand analogy. I get Im tired toobut for me its Like when I get into my car after work I cant start driving to go home
The symptom is not related to the severity or to the duration of MS. At times, fatigue interferes with function and is an important symptom to manage. I always wonder though. !
I am in college! 2021 FatigueTalk.comContact us: [emailprotected], What Does Adderall Fatigue Feel Like?
I can have the best night sleep and the worse day, and vice versa. Advertising on our site helps support our mission. What causes MS, and what do the symptoms look like?
Compensating for these disabilities requires greater energy and effort than would otherwise be necessary to perform daily tasks. Thank you so much for reading and commenting! This can reduce inflammation from MS.
This fatigue is vicious thats for sure. Types of Muscle Spasms in MS This change in the motor system causes a tug of war between your muscles. Best wishes, Calie
I describe my fatigue - exacerbated by ADD - as having a lead ball in my lap. At least 50 percent of individuals with MS report significant symptoms associated with depression. No, probably not. Others say that MS fatigue happens after physical exertion, such as taking the dog for a walk or doing the shopping. I wonder if anybody "got it"
,I sure hope so vvxjr9! How many times do I get to say "no. I was at work and strugging to write a sentence together. Your muscles and joints ache and you feel very heavy, sluggish. I try to play catch often as well, and seem to over do it 99% of the time. - Shelby, Team Member
,i always tried to explain to people that walking (when i used to walk; ah, the good ol' days) was like walking through really deep snow or carryiing huge globs of mud on your boots.
According to the National Multiple Sclerosis Society, there is currently no test that accurately measures fatigue, let alone one capable of making any objective conclusions about it. Sure, it could be worse, things can always be worse, but it should be better. By providing your email address, you are agreeing to our privacy policy. Those symptoms become amplified in moderate depression and can lead to a decline in confidence and self-esteem. I understand completely how you feel. Often, unexplained tiredness that doesnt appear to have a cause can be a result of high blood pressure. MS causes damage and scarring of nerves in the brain and spinal cord. I can't move in any direction, and my arms aren't big enough to wrap around it so all I can do is sit and wish somebody would come and take the lead ball off my lap.
Fatigue, unfortunately, feels like a moral dilemma. Acute Neuropathic Pain is sometimes an initial symptom of MS or may be part of an MS relapse. Learn more. I truly hope things get better for you.
The fatigue is miserable for me, so very difficult to just get out of bed but a shower and a plan for the day, like work really helps. I need the latter to have more quality of life. I continued to work and coach until my children were in high school.
I do feel the fatigue is eating me alive, and I wish I too knew how to beat.
I have MS too, and I totally understand your struggle!!
Gail
Thanks for your description of fatigue. Eating. It fits me perfectly at this moment.
,I have a question. A person with MS may experience both physical and mental fatigue. I take meds for the fatigue, I'm still never not tired though, but the meds at least help me get through the day.
Recommended Reading: Foods To Help Adrenal Fatigue. So What Does Chronic Fatigue Feel Like Sometimes, chronic fatigue feels like being covered in tar from head to toe. Heart failure causes signs and symptoms due to the excess accumulation of fluid within the tissues of the body.
Members of MyMSTeam describe chronic, profound fatigue that does not usually improve with a nap or a cup of coffee. I could go on. Fatigue can be very frustrating. The only other people I found that understand it had cancer.
- YouTube Bringing to light exactly what Ms fatigue is and what it feels like.
Wishing you the best, Calie
Thank you. I have run the medication gauntlet, and multiple tricks suggested to keep up the pace. The best thing Ive been able to learn is how to function with the fatigue the best ways that I know how.
I especially hate it when people tell me how can you be tired when you haven't done all that much.
Emlivh, isn't that the worst? Your doctor can help you sift through your health issues, as well as diet, exercise, and other lifestyle habits, in order to zero in on the cause and help you on the road to recovery. Thanks
,I am so tired I will fall asleep sitting up, I go lay down and I am out like dead for hours and I had just got up a few hours before.
This, he says, may be a result of a lack of appetiteanother symptom that can help you distinguish if your fatigue is being caused by COVID.
I also had my grown children take over some seasonal activities.
Well, high blood pressure increases pressure on vital organs such as the brain, heart and kidneys, which causes tiredness. Taking DMTs in the long term may also slow the conversion of relapsing-remitting MS to secondary-progressive MS, a form of MS that causes symptoms to worsen steadily. For example, being self-critical can worsen fatigue. You are SO strong to be dealing with this day after day! Everyday life can be hard work and you might not have the energy to cook, clean, bathe or go shopping. If stress remains heightened for a long time, there will be more cortisol and less dopamine and serotonine, the lack of which have been linked with depression. So, the fatigue is still there but not as prominent (it is also the biggest thing I struggle with because of MS). I hate that its made me like this 🙁
What a vivid analogy
If support from family and friends and positive lifestyle changes arent enough, it may be time to seek help from a mental health professional. Bowel problemssuch as constipation, diarrhea or bowel incontinenceare also common.
By slowly cooling down the body, an individual with MS may experience improvement in areas of physical performance, cognitive processing, and motor function. I long to be the girl I was when I was younger who could do anything for as long as she wanted. Don't get me wrong, we enjoy her company but yesterday I gave my husband that look. My husband is my greatest support. I found myself in it.https://multiplesclerosis.net/living-with-ms/ms-routines-when-olivia-benson-isnt-on/
The fatigue is something I have to maneuver through to complete whatever it is Im attempting to do. Inside the water I feel free and can move easilyalmost like before, but the second I step out of the water gravity kicks in and pulls me down. My husband had a hard time understanding why I always said "the TV is too loud", "I don't think I want to go to the concert" and many other activities that I was trying to protect myself from. I sat for 10 minutes in hopes it would pass. It can be so severe that it's disabling. Eat well. There is no way to convey how fatigue hits you unless you have MS. I was diagnosed with MS in 1986. I do my best not to say anything about it. Others can help you release extra fluid to keep it from building up in your body. Its become something I say without even thinking, because its just always looming there in the back of my mind. They are all terrific questions!
But having good sleep habits, avoiding caffeine and too much alcohol, and getting some daily exercise are good ways to prevent MS fatigue, says Dr. McCoyd. For others, MS fatigue can happen after cognitive exertion such as working on the computer and completing mentally-demanding tasks. Thanks for sharing, Calie. This can affect how much money you have. Fatigue: You feel like you want to sleep another eight hours right now after you wake up from eight hours of sleep and it seems like nothing can convince you otherwise. In our book Living with Fatigue, people with MS describe their own experiences. My legs feel at least 500 lbs. And, one of the most difficult things for me to explain to others is my level of fatigue.
Every little bit helps.
I have one question-
Your eyes are blurry and struggle with day light. It hurts to see what it does to everyone who needs me
Yes, and like you said, "I'm just always tired," so I just go with it. There is no cure for MS fatigue. My neurologist has prescribed it for me and I have been taking it for 7 months now. They are probably all associated with your ON, visual disruption causing your 'where i am in space' (sorry cant find the noun) to be wonky, which = Vertigo. Your brain is slow. Most people start to feel better after treatment finishes. Researchers have also established a link between POTS and Ehlers-Danlos Syndrome . I still have to try the normal activities like walking to the toilet etc to ensure I get back to my normal activities but its much harder than everyone expected because they didn't take the M S into account. Its a terrifying disease. They may find it difficult to perform everyday tasks, perform at work, or socialize. In response to nerve damage, the brain of a person with MS may be finding new routes for sending messages. Thank you so much and let me know if you need anything else! I became way less active than I'd ever been. Occasionally I start feeling an increase in my energy level in the evening. Examples include: Alongside taking medication, people may find that developing a good support network and sharing the experience of MS fatigue can help improve their emotional well-being. You May Like: Is Fatigue A Sign Of Depression. I have had M.S. Then because of that I go as hard as I can only to over do it on levels that are insane to recover from.
The debilitating condition can last for yearsor even a lifetimeand is not curable.
I hate this disease!
I'm with you, Victerglass44. And, like you I always remain hopeful!! Neurophysiotherapists and physiotherapists can demonstrate exercises to strengthen and maintain body functioning and there is a range of equipment available to help conserve energy and reduce stress on muscles and joints. Fatigue is so bad you cant bother to cook or eat. We all experience tiredness at times, which can be relieved by sleep and rest. I can honestly say that as I think back on my life, I have had it since I was a little kid. Another way that chronic stress makes us feel exhausted is by interfering with sleep, says Bufka. People may feel that they are unable to do as many tasks without getting tired as they did before.
As far as I'm concerned, it's like talking to a door knob.
it has become my normal as well. If I can stand each step is thought through as I remind my legs and feet what they are to do. Fatigue management in multiple sclerosis. Also Check: Anti Fatigue Mat For Corner Sink. Someone ends up wandering through the desert or the jungle, and they come upon this sneaky sand that easily blends into their surroundings. Best wishes, Calie
,I feel exhausted daily, so I can relate to this article. When Im drained and continue to push, I think Im putting myself at risk for getting sick, he says. When you throw in the imbalance it's not a good feeling. Consider Telecommuting.A great way to conserve energy is to reduce the amount of time spent traveling to and from work. The disease causes the loss of myelin, a protective coating along the nerves. You may also feel fatigued as a side effect of a medication youre on, or from drug or alcohol use. Your description of the fatigue sounds all too familiar and I am so sorry you have this unrelenting symptom also. Accidentally posted that reply!How to delete it and retry? Thank you for your comment! So why bother to waste energy answering. For so many years I could never pin point what my problem was and to be perfectly honest, at times I did wonder if I was a hypochondriac. Thanks for your input.
,Wow! He jumped up and advised I go to bed ASAP.
However, Thank you so much!! Tracking your daily sleep and activity levels can help you present him or her with a better overall picture of your condition, especially if your symptoms are vague. What I could really do with is a solution or a line of treatment. Thanks so much for sharing!
So agree with this description. oxybutynin (Ditropan), darifenacin (Enablex), or prazosin (Minipress) for, Modified Fatigue Impact Scale (MFIS). While medications used to treat multiple sclerosis may not help ease fatigue, they may help keep you awake and manage your tiredness. But with MS it is normal to say I can't.
Reasons for secondary fatigue can include: Some people with MS may find that using their muscles for repetitive movements, such as walking longer distances, causes their muscles to tire quickly. I have all the same symptoms as read in this article, plus it get bad I can't see or think. Here are a few: "As a physical sensation it reminds me of falling into quicksand/a swamp - it's a viscous, heavy, pulling feeling, but if I try to fight it, it hurts like hell and robs me of breath. I really appreciate you sharing, as it can be such a help for others, too. But other causes, like heart disease or COPD, are serious, and you may need to start long-term treatment right away. It is definitely a balancing act! Thankfully, my furbaby doesn't care! Wear your cooling vest or other cooling apparel and try to go outside either early in the morning or later in the evening, when temperatures are at their coolest. So, I'm also learning to just say Im good, but Im tired today.
Well said.
I used to say I felt lethargic all of the time before I knew it was technically fatigue.
Phone conversations and FaceTiming can be draining!! My parents stay abroad; every morning and every evening it is "Hi how are you feeling?" and like you say, we do love them for caring but goodness me. Manage SettingsContinue with Recommended Cookies, There are two major types of fatigue in MS. Tired is what I was after an allday hike in the muddy boonies with an US Army Infantry Battalion carrying weapons, batteries, radios and your personal gear ruck sack. They hate were goinf through it, but cant do anything about it just like us. Some patients are heat sensitive and have more fatigue when they are in a hot environment or are over-heated. We have to be conscious of what we say. on the fatique scale. I still have the fatigue, I still have to take naps most days, but I am getting things accomplished. The National Multiple Sclerosis Society reports "Fatigue is one of the most common symptoms of MS, occurring in about 80 percent of people. Fatigue is one of the most common and persistent symptoms of multiple sclerosis (MS). All we can do is help our loved ones try to understand.
Low levels of cortisol can cause weakness, fatigue, and low blood pressure. Janus
Hi CindyLou,
You can feel very down and not want to go out or be with people which can be hard for them to understand. I constantly have this sensation that my neurological system is running at high-idle inside me, even while not in motion, which I think leads to the frequent and rapid fatigue all day, every day, even if I do make sure to get plenty of sleep. Some passive garments are dampened and chilled before use. I hate this disease and I hate what it's done to my life and I hate having to hear people tell me that "it could be worse."
MS fatigue is more than the tiredness that everybody feels after exertion or missing a good nights sleep. Best wishes, Calie
My wife says she understands but I know she's tired of hearing about my health issues. They may find it difficult to do everyday tasks, such as dressing, bathing, and preparing meals. We avoid using tertiary references. Youre not alone! I hope things get better for you as well! MS Signs: The clinical signs of MS, like the symptoms, are also very variable. While we can't give any medical advice (for your own safety) if you haven't done so already, you might want to try a neurologist. It may feel as if someone is stabbing my legs with a small knife.
I'm 53 years old. Healthcare workers and chronic caregivers are the most susceptible people to compassion fatigue. Just know that I DO understand.
My toes were indeed, curled under themselves. That Includes eating more vegetables than anything, saying "No" when I just can't, Truly resting.in my jammies if I don't have the energy to put my clothes on and laying around not thinking or doing anything but maybe watching TV, sometimes listening to TV if I'm too tired to open my eyes, or sleeping and sleeping. When I feel fatigued, I take it as a sign that I need to step back and take a break..
They may also ache and hurt. Sometimes you forget words, sometimes while sentences or even chunks of your memory altogether. I have been diagnosed with MS for 16 years and I still do not know how I beat it sometimes and others times it devours me whole.
Great description! !
,Just fixed
This kind of MS fatigue is awful!
In my opinion, it is the worse MS symptoms.
Thank you for putting this into words. I even started to challenge myself a little more, but it is too difficult. I'm so glad that Calie's article resonated with you, and that you found some relief from reading it. Only my head and arms are above it and I need my arms to help pull me along. My man now just says "tell me if you're NOT wipedthat'll be a nice surprise."
,quicksand is a good description because you need to plan and be aware of pacing your body. However, some lifestyle changes, healthful habits, and medications can help people manage MS fatigue. Although no one knows how CFS/ME develops, researchers agree on a few facts. I too have a wonderful, supportive spouse.
I have learned to pace myself in such a way that every few days I have almost normal energy and strength to do something I love, such as a bit of gardening or play with a grandchild. "We do know that the younger the patient is, the more likely that external factors like medications, depression and stress are factors in fatigue," he says. None of those people have any experience with MS, but since they have heard about how someone deals with it, I MUST BE WRONG! Members describe disappointment and resentment from loved ones who do not understand how severe and unrelenting their fatigue from multiple sclerosis can be. The early signs and symptoms of MS can vary widely, and some can be significantly challenging. Every day in MS is a new adventure. Best wishes, Calie
Have you tried showering in cool water, doctp12? I gave up on that a long time ago.
When were feeling stressed, our sleep can get disrupted, which naturally leads to feelings of tiredness and exhaustion, she says. I feel like people are getting sick of feeling helpless and Im trying not to be a burden. Speak with your healthcare provider about whether your medication could be adding to your fatigue or feeling of fogginess. Good sleep hygiene would include a comfortable bedroom, no distractions and a cool environment. Feel fatigued may be due to missing vitamins and minerals in your diet, such as being low on vitamin D, iron, magnesium, potassium, vitamin B12 or folic acid. 80 percent of people with MS experience this overpowering feeling of tiredness in body and mind.
Please visit mymsaa.org or call 532-7667 for more information. Thank you so much for reading and commenting! Even minor daily activities may cause someone with fatigue to become more worn out. Its just awful.
Oh yes, Im there with you on everything you wrote so eloquentlyOk gotta take a nap now zzzzzzz
,Thinking of you
I despise it, and I long to be free of it, but like the quicksand, I cant just walk away. Janus
I get it. I am tired of it
,
Getting them in the house and put away takes enough effort. Best wishes, Calie
I also have tiredness most of the time. Things that you used to find second nature or easy are now a task and can be hard work. I am a writer by nature and would probably benefit from venting although i tend to see things cynically or humorously and not so sure i have a platform or where to find it. Reporting cognitive changes early to your GP, MS nurse or neurologist, can lead to a formal assessment to identify specific areas of concern and interventions to better manage your cognitive function and quality of life. Therefore there's no need for me to explain why I'm so tired and I've just gotten out of bed or just brushing my teeth put a toll on me I can't even cook breakfast. I became a spectator at my children's sporting events. MS can cause problems with mobility and muscle control.
Totally get the fatigue. MS fatigue can be very debilitating and, unlike ordinary fatigue, it can take a long time to recover from. I have had 2 heart attacks. Multiple sclerosis: Hope through research. I pray a lot to the Buddha. Acute means it has a rapid onset and is of short duration. This site has helped me to gain some very positive insight to my struggles with MS, life is easier when you know that you are not alone. Youll likely be encouraged to make some lifestyle changes as well. I try to kind of go with the flow, but not doing housework and doing very little cooking, and not being who I used to be makes me sad, and sometimes mad. If you would like to change your settings or withdraw consent at any time, the link to do so is in our privacy policy accessible from our home page. I try to do everything in my power to stay ahead of it, but one false move and it takes me down. Score: 4.7/5 (29 votes) . I looked down through uncontrollable screams and tears, pulling the covers back as I did. A description Ive often used to describe the fatigue is that I feel like my batteries have been depleted, removed, and Im just running on empty. My fatigue and exhaustion consume me. They do so using a scale. Rain or shine. Not all of my fellow employees knew about my MS so they would just stare at me lol but life goes on. There are no fair diseases but, for me, MS is specially unfair, because destroys our energy, witch it is the fuel of life. Try to improve your sleep pattern by reading the sleeping well section. It occurs in 75 percent to 95 percent of patients with MS. Now, I have a hard time to keep up with simply daily activities. Nearly 2.5 million Americans may have the condition. This overwhelming tiredness could occur any time in the course of MS, and it has not been shown to be related to measures of disability like the EDSS (Extended Disability Status Scale). But I dont know when. One thing everyone agrees on is that CFS/ME is a real, debilitating illness. The Neurological Institute is a leader in treating and researching the most complex neurological disorders and advancing innovations in neurology. I am also grateful that fatigue is the worst thing I have to face! Totally understandable and I am not and would never take away from anyone. Are RA, Lupis, other autoimmune diseases, diabetes as terrifying as MS??? Then I hit traffic, AND it started to snow. I can walk for miles, but my head is just so tired, blinking is a struggle.
MS symptoms in women: Common, early, and rare, How to self-assess multiple sclerosis symptoms, develop early in the morning, even after a restful night, interfere with everyday activities and responsibilities, be unrelated to physical ailments or depression levels, disrupted sleep due to muscle spasms or bladder poblems, tizanidine (Zanaflex), dantrolene sodium (Dantrium), or baclofen (Gablofen) for. What does an MS exacerbation feel like? I can say to my sister I am exhausted today, she will just say, well we all get tired at our age. like its a normal thing. If I do need to go out into the heat, I make certain to have a bottle of cold water with me and occasionally take an aspirin before going outside. I miss being what everyone else calls "normal".
I am also in college! I arrived in tears! Such a balancing act and different for everyone! Occupational therapists can suggest modifications to your home or workplace to improve your efficiency and reduce the effort involved in daily tasks. Good job.
,I came here today because I am frustrated by my fatigue. Then a simple dizzy step or sudden black out of the lights and I am down on the floor or ground. The only thing that helped was listening to my body. Thank you so much for sharing your post. for forty five years. I was sleeping and exhausted all the time and like you it was my worst symptom.
The thing that I notice is the months of debilitating fatigue happen at the change of seasons, especially from winter to spring, for me. Please reach out anytime! Coming to a Cleveland Clinic location?Cole Eye entrance closingVisitation, mask requirements and COVID-19 information. MS is much more like exhaustion to me. Some muscle contractions
And at the same time I wish those around me did. I am a very realistic person.
Best wishes,
Theres no spontaneity of hey! exercising during the day, but avoid doing so two hours before planning to go to bed. That it is difficult to hold things or write as your limbs feel heavy. I also have wondered at what point do I stop telling people that I'm tired since I am tired 24/7. It can happen at any time without warning or without any apparent reason. Dx in 1997 with RRMS then SPMS shortly thereafter.
Long story short.
What does MS tingling feel like? It is almost impossible to explain to others about fatigue. Its frustrating and I always second guess myself with am I just being lazy. How can I know for sure?
Cooling someone too quickly such as taking cold baths or sitting close to the air conditioner can cause shivering and vasoconstriction. Just as no one knows what causes MS, no one knows for sure whats behind MS fatigue. Its important to tell your doctor or nurse about how youre coping day to day and if you are struggling. remember as a kid trying to get through really deep snow, how hard that was? The MFIS is a 21 item questionnaire that covers physical, cognitive, and psychosocial health. There are ways of managing it and your medical team will try to help you. Here are some tips that may help you do that: First, know your fatigue. It is 2.30 in the afternoon and the watering is finish but so is my energy level. But I know I can't possible accomplish the task so I resign and sit watching someone else doing what I should be doing. Dont Miss: What Causes Chronic Nausea And Fatigue. When Im trying to explain to someone how difficult it is to walk I tell them that its like the feeling you get in your feet and legs after getting out of the water after a lengthy bout in a swimming pool, but it doesnt go away. God Bless my granddaughter for creating a whole magical busy world of pretend all while grandma lays on the bed or sits in a chair on the days I can't play. Sometimes people seem to totally get it, but a few weeks later try to help saying well instead of just listening to music or just watching a movie, read a book. Just put them on the back of your neck until the blood going to your brain has cooled. I suppose the frustration acts as an invisible exhaustion multiplier if not an exponential notation. What I wouldn't give to be their kind of tired!! The effort to manage the pain while doing the basic thing like washing and dressing is a killer.
Best wishes, Calie
I wish I could say that I didn't understand. What Does MS Fatigue REALLY Feel LIke? I no longer stress if I didn't wash the dishes last night or about making sure everything is dusted/vacuumed/etc in case someone stops by.
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